我是慢性乙肝患者27年,這是我的故事(An Epivir=拉米-HBV patient's review).：
慢性乙肝患者: 這是我10年每天服用EPIVIR,
成功抗癌的人I am living a normal life not because of Ganbonin but "Epivir"
"Epivir 肝安能使我恢復健康."
慢性B肝病友: 您是否每天服用EPIVIR? 您對這種藥品瞭解多少?我想和大家分享我的寶貴經驗,我的故事:
我從1999年1月6 日開始服用EPIVIR,託朋友從台灣設法尋找替代品,當時, EPIVIR在台灣、菲律賓、輕鉾它a的醫界還在實驗階段,但可買到以Lamivudine藥名銷售的替代品.這種藥的劑量為150mg,供AIDS患者使用,我託好友Alan從HK bought 1999年起持續服用.
這種藥的效果對我來說真是奇蹟!! 我連續服用兩週後,SGOT及 SGPT都恢復正常了!唯PT low about 82 而且最important 的數據A-FP normal, PT82以下,還是偏高.我在這裏特別n忠告B肝患者的就是「劑量」--
記得我開始服用這種150mg單位的藥品時,頭兩天有劇烈頭疼及耳鳴現象,於是自行決定把一顆藥分成兩半,也即每天服用半粒75mg的劑量,結果發現藥效奇佳!
2000年陳醫師告訴我消息—FDA正式批OK to use US>EPIVIR,她可以為我處方使用這種藥品,不必再麻煩朋友遠從HK buy藥了!!我求陳醫師處方150mg單位的劑量,讓我能節省50%的醫療費用,她欣然同意.就這樣,我一年節省的醫藥費用超過
US $800.00. (now $2,224.68 a year/half= $1,112.34)If you find on-line discount drug store in Canada and have 30% discount, then you can reduce your cost to $560.00 a year. Now my cost is $741.56 a year because I use 50 mg a day. (date
3/15/2008.
我時常在想:這種藥如此昂貴,中國大陸與台灣有許多病人無力t擔,怎麼辦??難道GLX藥廠寧願見死不救亦不肯low down售價嗎??
我寫過一封信給GLX公司,檢附茪H十年的治療數據作為參考,建議他GSK為HBV患者研發75mg劑量的藥品以半價在市掛售,造福病患(附鴢H及參考資料),寄出後竟如石沉大海,沒有接獲任何回信. 我瞭解 他果這樣做,就會減少收益幾US$十億元!!
Michael Han
Muir Lodge for Sale 3M
http://www.yosemitemuirlodge.com/4sale.htm
Owner retire 27 room+43 acres
140 HWY creek frontage
On 3/1/2006,1st time in my 26 years the test shows Antibodies <5.
The Hepatitis BE Antigen is tested negative I cannot infect others.
( Hepatitis BE antigen is a sign that a patient is highly infectious & sign of worse infection.)
Dr, Lai said 4/10/2000 in Hongkong :
” The implication is that monotherapy with just Epivir-HBV alone will not be the ultimate regimen. Neither is monotherapy with alfa interferon, the other FDA-approved drug to treat chronic hepatitis B. Most studies to date have not shown that the addition of alfa interferon to Epivir-HBV is any better than either alone, and that it
contributes a significantly worsened side effect profile.”
The above conclusion by Dr. Lai is apparently overturned by this
discovery of Michael Han’s lab test results.
There are some controversy on the subject matter below:
1. The patient has been using 75 mg dosage against Epivir 100 mg created for HBV patient only by GSX.
2. The 1st application for this patient had no doctor’s prescription for a period of one year.
3. In clinical trials in Japan as of February 1997, All 11 patients required hospitalization. One patient died.
4. Other clinical trials results through out the world have not been provided by GSX.(Glaxosmithkine) 100mg and 150 mg Epivir at same price.
If you want to check it out your self, here is Glaxo Wellcome's Medical Services Department at (800) 334-0089.
This is sure an encouraging news not only to the 1.25 millions HB patients in the States but possible 300 millions in the world.
According to Michael Han, he has contracted HB in his late 40’s
in Taiwan. Although he has searched for a complete cure for years and found there is none in the available market. We found that this is a sign that we might be able to have a breakthrough and See the
light at end of tunnel for HB patients.
I am on my way to live a normal life.
According to current CDC guidelines, values greater than or equal to 10 MIU/ML indicate immunity. My test showed <5 which
means values smaller than 5 antibody (Quant).
It could get better as the years progress. I have not stop oral
Epivir and no intention to interrupt the treatment until it is
definitely confirmed by all Dr. I know.
I want to advise Asian poor patients. Get 150 mg Epivir and cut half taking daily. You will be living a better life.
Thank you for spending time to read this un-polished English.
For more information, please contact mikkyhan@gmail.com
Michael
P.S. 1. Hospitalized 7/12/06 after 3,050 days
2. Epivir was interrupted for 12 days
after7/25/06 Dr. Jean, Wenny confirmed
Rocky Mountain Spotted Fever
3. I restart Epivir 7/31/06
I was feeling terrible weak after retake Epievir.
The blood test shows normal I decided to take the
risk regardless the fear of Epivir ressistance.
Meantime, I Sent e-mail to GSK as follows:"I am possibly the longest Epivir user in records 3,208th day
up to 12/21/06. I noticed the new Drug named
Baraclude and Tyzeka just wonder
if they are better than Epivir.
Following are Continued stories about
my health condition:
A. 血小板(platelet)心力衰竭,AFP & 慢性B肝患者
http://blog.udn.com/mikkyhan/1942309
B.乙肝,高血壓?! 我可是因禍得福了
http://blog.udn.com/mikkyhan/1919389
C.Pulse 30 is dangerous 心力衰竭. Pacemaker
save my life!
http://blog.udn.com/mikkyhan/1887108
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